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Health Care Systems – You need to Listen

Listen. I do not think it is right for babies to die in hospitals.  I do not think it is right for parent’s concerns to be dismissed by the health care system.  I am fortunate to live in a country …...

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Dear Policiticans – Listen to Us

This is an exerpt from letters to my MP (Member of Parliament) and MPP (Member of Provincial Parliament).  I encourage you to contact your local politicians and ask for change. *** I am a parent of...

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Amazing Grace – a special thank you

As crappy as Little Miss Adorable’s start in life was, we remain grateful to (most of) the doctors and (most of) the nurses who helped us along the way. I cannot say enough about the nurses in the...

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To whom it may concern: Twitter, Tears & Search Engines

From my Twitter account: my heart is breaking for the person who Googled “how to tell if my 2 y/o has Duchenne Muscular Dystrophy” & got me #sendinghugstostrangers From my WordPress Site Stat Page:...

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Circular Thinking Leads You in Circles

I think I’m having a midlife crisis.  Or at least, the same issues I’ve been struggling with for the past 10 years are rearing their heads.  Again. 10 years ago I wanted to live and work in a small...

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My Son’s Second Birthday: Pain Part 1

Part 1 When my son, Mr. Sensitive, turned two Hubby and I wanted to have a big party.  Not the kind of semi-wedding festivity that his first birthday was, but big enough to invite relatives from both...

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My Son’s Second Birthday: Pain Part 2

You can read Part 1 here. Part 2 Once the doctor read the X-ray a fracture was confirmed.  But not in his lower leg.  Mr. Sensitive fractured his femur, the toughest bone in your body.  The break was a...

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Enough of the “What ifs” already

I have been “what if-ing” myself to death lately.  Lest you think this is some kind of new swear word (which it very well could be, given our track record – check out these posts), rest assured it is...

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Pain

I have chronic pain.  I will spare you the details, but some days everything hurts and I’m crushed under a wall of fatigue.  I am very familiar with the altered state of a migraine where a world of...

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A Tale of Two Strollers

We are fortunate to live in a country with a universal health care program, and, we are blessed to have of the equipment of special needs – walkers, stroller, wheelchairs – partially funded through...

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